A recently launched crowdfunding campaign hopes to raise funds towards the life-
changing surgery of a child in Malta.The Let’s give Kate Hope to Walk campaign launched earlier this month on local platform, Zaar, aims to raise €15,000 towards the cost of surgery and therapies for four- year-old Kate. As one of just 200 people worldwide diagnosed with Tatton Brown Rahman Syndrome (TBRS), Kate also has a mutation on this extremely rare disease, making her the only case of its kind in the world.
“Currently, Kate can’t stand on her feet without a lot of pain. She requires surgery in
both feet to fix her tendon shortening and feet deformation caused by her syndrome,
and to help her stand painlessly and, hopefully, walk,” explain Kate’s parents,
Charmaine and Daniel.
In just four years, Kate has already undergone three surgeries: open heart surgery,
Achilles tendon lengthening and abdominal wall defect. She attends various therapies
every day, both in Malta and abroad, to improve her mobility, made possible by past
contributions. Unfortunately, her condition is worsening and she has also been
diagnosed with cone dystrophy – another rare disease, which could lead to blindness.
While the various therapies Kate undergoes help her improve, they are not enough to
withstand her accelerated growth due to the syndrome. This next critical surgery aims
to help flatten her feet and provide stability for balance, strengthening and better
weight-bearing, long-term – and ultimately should lead to her being able to walk.
Set to be carried out by specialised doctor Matthew Dobbs at the Paley European
Institute in Poland, the estimated cost of the surgery, combined with post-operation
therapies and other therapies during the five weeks abroad, totals €36,500. While
generous donations have already raised much of this sum, Kate’s family has launched
the crowdfunding campaign on Zaar to raise the remaining €15,000 with the help of
Malta’s community.
“Bearing in mind that she might lose her eyesight, for Kate to walk is imperative for her
independence,” Kate’s parents continue. “We want to thank all the generous donators
that have already contributed, and all those who back the Zaar campaign, for your
support, kindness and generosity. With your help, you can give a better life to our
daughter, Kate.”
To find out more and to donate to the Let’s give Kate Hope to Walk campaign on Zaar,
visit www.zaar.com.mt.
